This site is very much a democratic learning experience, and we need to work together to build the body of information available. Its success depends on people in the dementia community posting information and engaging in discussion. You can to post information in the form of documents, links, video, podcasts and blog commentary on this page. You can also have a dialogue with other people in the sector by setting up a discussion group.
If you have information/document(s) you would like to post about this page, click the button below.
If you would like to talk with others, follow these instructions for setting up a discussion group.
Advance Care Plan document and guide.
The national ACP working group have now completed their update to the ACP template and guide. Working with consumer groups around the country, the team have developed a plan and guide as a single document that provides clearer, simpler prompts to help people consider and document the care they would or would not want in the future. The plan can be completed as a writable PDF or in hard copy. You can access the plan and guide at www.advancecareplanning.org.nz.
Contributor: Shereen Moloney - 30 Aug 2016, 12:42 PM
2015 NZ DEMENTIA SUMMIT REPORT
The NZ Dementia Cooperative (NZDC), Alzheimers NZ and Carers NZ present the final report and recommendations from the 2015 NZ Dementia Summit.
The 2016 World Alzheimers Report warns that countries like New Zealand are unprepared for a surge in dementia cases and need to take urgent action, and there is currently much debate about what NZ needs to do to manage this projected increase. The recurring questions are: What care and support do people with dementia need? What do families need to support their loved ones? How must the health and social care system change to respond with quality care? How do we get there?
Those critical questions prompted the NZDC, Alzheimers NZ and Carers NZ to collaborate to hold the NZ Dementia Summit as a national discussion about the way forward for dementia care in NZ.
The objectives of the Summit were:
To outline what is currently working well.
To identify what improvements are needed.
To identify the steps that could be taken to make the wanted improvements to ensure people’s needs are met and appropriate care is provided.
224 people from across the sector gathered to discuss the many issues involved. The Summit attracted a wide range of participants, including health professionals, service providers, government officials, educators, researchers and people affected by dementia, including family carers, who all shared their experience, knowledge and expertise.
NZ Dementia Summit participants were clear that changes are urgently needed in the health and social care system to better meet people’s needs now, and to ensure the system is robust enough to weather the projected increase in the number of people with dementia. They acknowledged that these changes will be challenging. National leadership will be needed and everyone in the dementia sector needs to work together to achieve them. There was strong commitment from the Summit participants to do this.
This report summarises the Summit participants’ discussion and responses to the three objectives, and concludes with recommendations for critical action. We see it as the basis for the ongoing discussion the sector needs to have about improving dementia care.
You can access the report on this link.
Contributor: Shereen Moloney - 20 Sep 2016, 8:29 PM
Reading and Dementia
Please visit www.dovetalepress.com for information on our reading and dementia project. This site also gives information on the dementia-friendly book series. We are working in conjunction with Bupa, who have generously provided sponsorship. Please phone on 027 410 8708 if any questions about this project, or if you'd like to become involved.
Kind regards, Dr Sally Rimkeit Psychogeriatrician and Dr Gillian Claridge Applied Linguist
Contributor: Shereen Moloney - 25 Nov 2016, 2:25 PM
Resource type: Video
Title: DOTTY - This funny and touching little film about an old lady
Description: This is created by NZ film makers. “This funny and touching little film about an old lady struggling to send a text message has been charming the pants off film festival audiences from Tokyo to Nantucket – where it won Best Short Film. It will have you both laughing and reaching for a tissue”
Target Audience: This is a human interest piece, to give some insight into some of the experiences for people living with dementia.
Appropriate Audience: General interest and awareness.
Notes: This is a NZ based film.
Pricing: available for purchase here https://itunes.apple.com/us/movie/dotty/id863205247 to support the production team.
Contact Person: https://vimeo.com/brettandmick
Contributor: Dementia Resources Project - 25 Jan 2017, 2:49 PM
Title: Cognitive Stimulation Therapy in New Zealand: An Evidence Based Treatment for Dementia
Appropriate Audience: People diagnosed with dementia, family/whanau, occupational therapists, psychologists, social workers, diversional therapists, nurses.
Old Age Psychiatrist
The University of Auckland & Auckland City Hospital
Gerontology Nurse Specialist
The University of Auckland & Middlemore Hospital
Radius Taupaki Gables
Contributor: Dementia Resources Project - 20 Jun 2017, 4:13 PM
Title: Careerforce - Describe interaction, supports and reporting for people with dementia in an aged care, health, or disability context -Unit standard 26974 iLearn resource
Description: This is an open online course developed by Alzheimer's NZ and Careerforce for people interested in understanding how to support someone with dementia. Topics include: Dementia and its effects; Interacting with a person with dementia; Community support services for people with dementia; Reporting requirements for dementia carers.
Target Audience: Family/Whānau carers, Home & Community Care support workers, Aged residential care staff
Freephone: 0800 277 486
Phone: 03 371 9295
Fax: 03 371 9285
Contributor: Dementia Resources Project - 28 Jun 2017, 3:24 PM
Title: Ministry of Health – New Zealand Framework for Dementia Care
This publication provides DHBs and the health and social support sectors with a guide for developing their dementia care pathways. The framework has three guiding principles:
· following a person-centred and people-directed approach
· providing accessible, proactive and integrated services that are flexible to meet a variety of needs
· developing the highest possible standard of care.
The publication also highlights five key elements for effective dementia care:
· awareness and risk reduction
· assessment, diagnosis, early intervention and ongoing support
· living well
· meeting challenges to maximise wellbeing
· end of life.
Overarching factors that must be considered across all five key elements are also identified:
· education and training for people with dementia and their families and whānau
· workforce education and training
· readily accessible information
· family and whānau support
· culturally appropriate services
· funding streams
· monitoring and evaluation
Phone: 0800855 066
Contributor: Dementia Resources Project - 03 Aug 2017, 10:45 AM
Title: Dementia: Stigma, Language, and Dementia-friendly
Description: This article discusses the stigmatization of people with dementia, the role of language in that stigmatization, and how a lack of inclusion undermines Dementia-friendly initiatives.
Kate Swaffer – firstname.lastname@example.org
Contributor: Dementia Resources Project - 04 Aug 2017, 12:10 PM
Title: BBC – Living With Dementia
Description: Radio, television, and digital content with a focus on living with dementia.
Contributor: Dementia Resources Project - 20 Oct 2017, 12:32 PM
Title: Dementia Services Development Centre – Dementia Blogs
Description: The Dementia Services Development Centre offers blogs connected to dementia related topics.
Contact: Online contact form - http://dementia.stir.ac.uk/contact-us
Contributor: Dementia Resources Project - 16 Jan 2018, 1:58 PM
These guidelines were produced by the National Dementia Framework Collaborative with extensive input and feedback from the across the sector, including family and whānau of people living with dementia.
This document is a guide for education providers to develop effective, person-centred education programmes for family and whānau supporters of people living with dementia. It provides recommendations for core education topics for family and whānau supporting people living with dementia relevant to the stages of early and mid-stage dementia. There are also add-on topics relevant to pre-diagnosis and late stage dementia.
Contributor: Shereen Moloney - 14 Jun 2019, 3:26 AM